AUTHOR: Carolyn Savage | POSTED: 11/22/14 9:54 AM
Thank you so much to everyone who answered our call for thoughts and prayers yesterday. They worked. The stridor is gone and Nicholas didn’t have to be intubated. Last night was a little rough because he wasn’t allowed to nurse. The doctors wanted his tummy empty in case he did need to be re-intubated.
He’s eating now. Albeit through a gavage tube—I don’t think he cares. He’s not hungry any more.
Now that yesterday’s swollen airways are on the mend we turned our attention back to the original problem of randomly collapsing lung lobes. Unfortunately, this morning’s chest Xray revealed a collapsed upper right lobe which was the original problem that landed us here.
Sean and I informed the neonatology and pulmonary team on Thursday night that if after extubation the lung problem re-emerged we would need to move Nicholas to Cincinnati Children’s (one of the premiere pediatric pulmonary hospitals in the country). After this morning’s Xray they offered to flip one more diagnostic stone before we go.
Nicholas is currently on call for a chest CT angio with contrast. They are looking to rule out an errant blood vessel running off of the aorta that may be placing unnecessary pressure on the upper lobe of his right lung OR a malformed bronchial tube that is not allowing air to flow to his upper right lobe. If they find no structural abnormalities they will facilitate the transport for us…hopefully…later today.
If they do find an abnormality–well–we will cross that bridge if and when we have to.
You all, I cannot express how unsettled we are. There is a lot of unknown in our immediate future not to mention the possible logistical nightmare of tending to a critically ill child hours from our home and our other five. They all have needs and our older four are getting theirs met by people other than their parents.
It’s amazing how mom guilt can be so devastating.
Sean and I continue to be thankful for the help of my mother, his mother, our old babysitter, Valerie; our new baby sitter, Erica; and our family and friends who are on call for whatever we need. It’s comforting to know we have help.
As always, please continue to hold Nicholas in your prayers. He is comfortable this morning and for that, we are grateful.
Oh…and I will update our Facebook page later this afternoon when we have the results.
Drew was able to meet his little brother last night. It was a special moment.